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20 Aug 2019

Getting stronger with EMSCULPT, the no-pain, muscle-building, fat-loss medical device*

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*In collaboration with S-Thetics, Beaconsfield. My husband is super-fit, works out most days with weights and the odd run. But although...
18 Sept 2018

A sharper look with EndyMed's V-shaped facial treatment

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The paradigm of the older 'invisible' woman has now been demolished, as business leaders, movie stars, musicians and supermodels ...
31 May 2017

EDS Awareness: Coming to terms with chronic pain

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As ever, My EDS Awareness month post sneaks in on the last day of May. It's been a big month, including a short, but amazing, trip to...
17 Jan 2017

Farewell, dear uncle, for you were the best of us.

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And so farewell Uncle Ray, farewell. Though we shared no blood, I knew you every day of my life that I can remember, and then some. Yo...
31 Dec 2016

How we can use the power of thought to recover from the body blows of 2016

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2016 may not have actually seen more celebrity deaths but the point is, it felt like it. Those who died were largely beloved figures. By New...
23 Dec 2016

Building a website for your group or charity on a shoestring budget

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I recently took part in a webinar aimed at helping rare disease patients who want to start a website for their patient group or small charit...
15 Nov 2016

Ehlers Danlos syndrome. Sometimes hard to see, always hard to live with

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Son2 and I were both diagnosed with Ehlers Danlos syndrome by leading world expert in the condition, Professor Rodney Grahame. As well as be...
28 Aug 2016

Study indicates deconditioning doesn't cause PoTS, but has a cardiac trigger

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A very small, yet enlightening medical commentary about Postural Orthostatic Tachycardia syndrome (PoTS) has recently popped up. PoTS is...
11 Jun 2016

The Hydrafacial: an easy way to beautiful skin

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When you have a chronic illness, everyday life can seem like walking head-on into a hurricane. Putting one foot in front of the other, both ...
7 May 2016

The enigma of Ehlers Danlos syndrome and why it's vital to make the #InvisibleVisible

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Ah, it's Ehlers Danlos Awareness Month again, hurrah, zebras unite and shake your stripes! Gently, though, we don't want any awarene...
21 Mar 2016

Disabling effects of PoTS shown in largest ever survey and how educating health professionals can help

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Postural orthostatic Tachycardia syndrome or PoTS, is a complete bastard of a condition. It doesn't kill, thankfully, but it can quite ...
22 Dec 2015

Can you help #careforLaura crowdfund fund life-saving surgery for Laura's Ehlers Danlos syndrome?

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As you may know, since 2013 have been disabled by the rare disease (or rarely diagnosed disease), Ehlers Danlos syndrome. I've been at r...
2 Dec 2015

How to rejuvenate your skin in two easy steps

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You may have seen my previous post about visiting the S-Thetics medical aesthetic clinic in Beaconsfield, Buckinghamshire when I sampled t...