This blog is for the slightly random stuff about life that doesn't fit on my fairly awesome, award-winning site, Special Needs Jungle
31 Mar 2013
17 Mar 2013
Raising awareness of Ehlers Danlos Syndrome - an under diagnosed rare condition
Lara Bloom, who runs the Ehlers Danlos UK Support charity, is making a documentary about EDS to help raise awareness of what is a rare but also an under-diagnosed condition.
Ehlers Danlos is a connective tissue disorder that Son2 has. He regularly has dizzy spells, joint pains and extreme fatigue.
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Ehlers Danlos is a connective tissue disorder that Son2 has. He regularly has dizzy spells, joint pains and extreme fatigue.
Labels:
#ehlersdanlos,
EDS,
ehlers danlos syndrome,
rare disease,
RareConnect
12 Mar 2013
It's just the way I roll...toilet roll
I'm with the over-the-top camp. What about you?
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Labels:
loo roll,
tissue,
toilet roll,
visually
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